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Name
Nina Frost
Title
President, Rare Hope
Bio
Nina leads the international research program for Alternating Hemiplegia of Childhood (AHC), uniting multiple AHC patient organizations around the world. Nina has spearheaded the design, centralization, and management of a strategic portfolio of therapy-driven research on behalf of the AHC patient community. She takes a hands-on approach to project management, treating grants for scientific studies as strategic investments. Nina champions a "patients-as-partners" model to develop and execute innovative, patient-centric studies. She has led novel initiatives to investigate the priorities and symptom burdens of the AHC population, enabling her to represent patients with authority and precision.
Nina’s prior professional experience was in management consulting. Nina holds an MPhil in History from Cambridge University, and a BA from Wake Forest University
Nina’s prior professional experience was in management consulting. Nina holds an MPhil in History from Cambridge University, and a BA from Wake Forest University
